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Showing posts from July, 2013

Home support -we got it!!

For five years we have talked about someone coming to our house to help us with Mia. Many weekends if not all we've said to each other god home help be great now. For five years we've fought for our daughter to have her right to help her live with her condition. And help for us. Before I started this blog I had fought for years and was tired and we had lost our faith in the system. When I decided to start writing this it was like I had the strength to fight again. I emailed the HSE everyday different people all in the one department. I was done playing nice and having my daughter just be a name on the waiting list. I was done trying to juggle everything and being constantly overwhelmed .last week I got a phone call to tell me that Mia had been granted 4 hours home support. I was shocked and thought it was too good to be true. I was so happy for her. Finally someone was realising what she needed. I met with the autism nurse and Mia's new home worker on Wednesday. I was nerv

July provision-summer saviour!

I only heard of July provision last yr. had no idea what it was. We were looking at new schools for Mia as her old school felt like they couldn't take her any further as they didn't have the resources. It had been a very hard yr for Mia and us. She wouldn't participate in class, was being bullied and was falling behind in maths in a huge way. So much so her ability was marked the same as junior infants level. She had great teachers but they had tried everything she just couldn't participate in anything.  Four weeks before we decided to change school we were called in and told the school was recommending Mia be put in an autism unit. I was shocked. We both were. We both walked away from the meeting feeling defeated and lost. I decided to join a support group and heard about EducateTogether. They had an autism unit attached and seemed to have more resources. We went up to look at it and straight away I had a good feeling about it.  They told us about July provision.its an